A Day of Rest

Today was an ok day for Bailey. She's still really really tired and slept most of the day -- and she's not on any drugs to knock her out. That's concerning to me, but the doctors say it's probably a combination of built-up sleep deprivation and maybe some depression. But the good news is that she hasn't been nauseous today, but she still isn't eating much. She's really not awake long enough to eat much. Her peeing has slowed down a bit and she has gained 2 pounds each of the past 2 mornings. Dr. T gave her the option of going back to ICU on nitric and seeing if that made her feel better -- since last time they put her on it she made an immediate improvement. She really doesn't want to go back to ICU, but she's considering it just to see if it will make her feel better. Dr. T also came in today to answer some questions she had about the VAD that he might need to use. Her biggest fear is that we could go home on it, but he assured her that, IF she has to have one, by the time they get it in and she recovers from surgery, she would be ready to go home. And, also, he wouldn't let her go home with it until she was comfortable with it. He made her feel much better. Saying that we're "ready" for the next step might be pushing it a bit, but I think Bailey's to the point where she's really tired of being sick. It's a scary thought, what our future might hold. We just keep praying.

Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge Him, and He will make your paths straight.
Proverbs 3:5-6

Good night.
Angie