Cardioversion #25

Cardioversion went well this morning -- very quick and only took one try. However, she went into flutter 45 minutes later. That was a disappointment. They decided not to do anything over the weekend and just let Bailey rest and see if she can get to feeling better. She's still nauseous and very, very tired. I think the tiredness is from a drug, adavan, that is a relaxer. But it really drugs her up good. I was worried today that the exhaustion might not be from the adavan and maybe more due to ill-health and depression, and that was very worrisome. I tell ya, it's very difficult to handle this when she feels so bad - when she wants to wake up and cries because she can't - when she sits up and grabs her puke bucket and hovers over it with her eyes shut, swerving back and forth trying to keep from falling asleep - when she looks at me and says she's scared - when she can't stay awake long enough to entertain me.

Dr. T came in today and said he's talking with Dr. D about an open heart surgery to repair 3 of her 4 leaky valves. He covered all scenarios including another VAD (not the Berlin this time, since she's grown big enough for the American version) and possibly bridge to transplant. We have been aware of the possibilities for a few months now, but hearing it again and knowing that if they can't get her in sinus rhythm it could happen sooner rather than later weighs quite heavy on our hearts. Bailey didn't want to talk much with Dr. T today about what she might have to be going through here before too long, but she has now decided she wants to hear more about the VAD he might use and ask other questions. The VAD he's thinking of using is one that is implantable and she could go home with. But going home with it scares her - she wants to be right here at the hospital safe and sound in the midst of her medical team. He's coming to talk to her tomorrow and hopefully he can help calm her fears a little bit. She's been so sick lately that I think she's at the point where she'd like to do whatever can be done to make her feel better even if it involves another surgery and VAD.

This is pretty scary going into this again. Having been there once, I just hope and pray that this next time around is as successful as the first time. Please continue to pray for Bailey.

Thank you,
Angie