Happy Halloween!
Still on the nitric. Bailey slept great last night and had a great day of eating and peeing. That's ALWAYS good. I didn't sleep too well and woke up with a big headache. Every time the door would open throughout the night, I thought they were going to whisk us away to ICU. So not much rest, but it was SO GOOD to see Bailey feeling so good today. She did, however, go into flutter again today around 4:00 or so. BUT, it's her normal flutter this time -- not any of that 170 heart rate stuff or everyone running in thinking she was in flutter when she says she isn't. This is her normal stuff. So much less dramatic today . . . much easier to take. Bailey did get a little mad for a minute and said she just wanted to go home, but she didn't let it keep her down. Dr. Hubbard came up to confirm the flutter and tried to pace her out of it, but that didn't work . . . and it hasn't worked on any of her other normal flutters she's had so we weren't surprised by that. Dr. D came up and said she'll be cardioverted in the O.R. tomorrow and he'll be the one doing it. That also made her less anxious about it. Dr. D says we'll be here through the weekend, at least. Unfortunately, all the fluid has returned. She really is back to her pre-procedure weight -- we were hoping the 100-year-old scales down in ICU were off by about 10 pounds, but just not the case.
We're hoping for another restful night for Bailey, and hoping to get some rest myself.
Josie and Rissy are trick-or-treating right now. We wish we were there with them. The hospital set up stations on all the different units for patients here to trick-or-treat -- it was so cute to see all the little costumes. Bailey couldn't participate because of the nitric oxide machine -- not portable -- so they brought the trick-or-treating to her. "Our people" are so thoughtful.
And to the Regulators, thank you so much for helping take care of us. We are truly speechless at your thoughtfulness and generosity. We are extremely touched and thank you from the bottom of our hearts. Maybe we can meet you all some day and give each one of you our own hugs.
Don't eat too much candy, everybody! Happy Halloween!
Angie
posted by Bailey @ 8:31 PM
5 Comments:
So glad to hear you didn't have to go back to ICU and that Bailey was able to rest. Hopefully you'll get some rest tonight Angie. I sure wish I didn't have this cold so I could come visit. Wishing you a calm day with some fluid loss...we all love you!!
Aunt Robin (Uncle Jim, Erica, Emily and Lyndie)
Bailey and Angie: I had a nice talk and a little cry with Aunt Robin on Tuesday. We are all so worried about you both, but we are so proud of how well Tom, Josie and Marissa are holding up during these really tough weeks. I hope everyone had a good restful night.
Love, Diane
Good Morning Ladies-
Well, we are so glad to hear Bailey is feeling a little better.
Josie & Marissa were so cute. I'll
tell you something funny-- Our
neighbors accross the street didn't
take their little trick or treating. So Toni and I put a trail
of candy up to the door. Here's
the funnier part. Later, Josie, Marissa & Emily followed the candy trail and had trick or treat because the lights were out. They thought that they were just scaring trick or treaters-and someone was going to jump out at them. Toni & I watched the whole thing. Needless, to say we were hysterical watching then finally we called them and confessed what we had done. We all got a great laugh.
We'll be thinking of you both today!!
Much love & Prayers-
Dee, Mark & Kids
I'm trying to find out how to use this thing. Hope you are feeling better today!
Love, Grandma and Grandpa
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