Monday, April 25, 2005

Medicines Overhauled

Today's project was to take a look at all of Bailey's medicines to see what they could get ride of, what they could reduce, etc., to maybe let the coumadin (blood thinner) work more effectively. They think some of the medicine might have been interfering with it. So, they got rid of quite a bit and rearranged others. She had to get another heprin shot tonight though, along with her epogen . . . so she got two shots! Lucky Bailey. Or should I say . . . lucky Amanda (her nurse). She was very brave, but the heprin shot was very painful.

Bailey had a nose bleed today that lasted a couple hours. Had to call in the "big wigs" to tell her to shove cotton up her nose and apply pressure. She did, and it worked. Nose bleeds while on a blood thinner can be a little tricky, but still nothing really to alarm anyone -- except Marissa. She whispered to me, "Mommy, I think I'm gonna puke if I look at Bailey right now." Haha!! She was so cute. I guess she doesn't like the sight of blood. Marissa spent the day with us and was such a good little girl, again. Although she did enjoy messing with Aunt Vickie when she came to visit. Sorry Vickie!

Colin was given the OK to move about the hospital this afternoon. He went with us when we walked down to X-ray and then to the library, so Bailey got to visit with him finally. He's not getting discharged until at least tomorrow, so he's coming down tonight to play some games and give Bailey a little grief over whatever he chooses. They have fun bantering each other.

Continuing to hack away at homework. We're down in the library right now while Bailey types up a quick writing assignment. Then back upstairs for math, science and social studies. Scott must have seen my blog posting from yesterday because he called this afternoon and said, "I didn't know Bailey had any homework this weekend!" Seems Bailey might have been a little misleading. Hm. Those teens! Either that, or she's got her dad wrapped around her little finger. Haha!

Geez. I don't know where the day went. We've been busy all day - can't believe it's evening already. They finally filled the water back up in the atrium over the weekend. They drained it just right when we got here back in January and it's been empty ever since. So glad to hear the sound of a fountain. And they started the fire out in the courtyard also. I love the sound of water fountains and the peacefulness of a fire at night. So I'm happy!

Bailey's got more energy than ever. She's pushing the Berlin Heart around by herself now. Hasn't been nauseous or a headache in a while now either. Yeah!

Talk to you tomorrow, and please keep praying for the donor and his/her family.

Love, Angie

2 Comments:

Blogger Annette said...

Hi Angie! It's so great that Bailey's getting stronger. It's gotta be all the food people are bringing you! I am praying for all of you - your family and the donor family. I know you're getting positive vibes from so many people out there! I hope you continue to have a good week and also that the heart will come soon!

All my love,
Annette

10:08 PM  
Blogger Sue Figert Meyer said...

I ask God from the wealth of his glory to give you power through his Spirit to be strong in your inner selves and I pray that God will make his home in your hearts through faith.

11:33 PM  

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