Friday, April 15, 2005

Dr. T is back!

Dr. T's back!! All is well again. Bailey showed him her wad of cash she has stashed away, and they started literally playing tug-o-war with it. Dr. T was actually leaning over her bed reaching for her hand behind her back when he said, "Give it up! You can't win! I'm more mobile than you are!" At least they're entertaining. He loved his lava lamp. He really thought it was cool. But then he was eyeing Bailey's glitter lamp (like a lava lamp but there's little squares of glitter instead of lava floating around in there) - I told him that wasn't manly enough for a bachelor pad. I think he was disappointed. I have Bailey's picture she got taken with Reggie Miller (2 days before Christmas when we came to talk to the doctors about this whole thing) sitting next to her glitter lamp. Dr. T says, "Oh, I see Reggie made it by. Good." I said, "No, that was taken back in December." There he goes mumbling again. He said, "Oh, well never mind . . . [and it got worse and worse]." Bailey was preoccupied at the moment speaking with her nurse Beth, thank goodness. I guess he's trying to get Reggie to come and see her. I just laughed and said "You know, I actually understood every word you just mumbled." We had a good laugh over that one. Bailey made her opinion known to Dr. T about the doctor that was supposed to be checking in on her and recycling the Berlin Heart while he was in California. (We only saw him twice during Dr. T's absence.) Dr. T walks in today and Bailey says, "Boy, you really picked a good one to recycle my pump while you were gone!" I think Bailey's running this place.

Marissa gets to spend the day with us again tomorrow. We had such a good time yesterday. We played games and colored and watched movies and ate McDonalds for lunch and for dinner! Thank goodness for their salads.

There's a little boy about Bailey's age two doors down who must have just gotten a transplant. There's a sign on his door that says "Post Cardiac Transplant Precautions . . .". I wanna have that sign and I want it now!! . . . Whew!! I feel better now. Just had to let it all out.

Bailey's fish is still alive! I'm so proud.

Bailey felt great today. She woke up without nausea and without a headache! I did talk to Child Psych today about the girls not getting along too well with Bailey right now. They said they see that a lot in families of cancer patients who are in the hospital for months at a time, so they were not surprised at all that our family is experiencing the same kind of thing. She is going to look into a psychological explanation but she made me feel much better - that it's perfectly normal and will not take any time at all to return to normal once we get home. I pretty much expected that. It's just weird - our family has always been really close and its so strange and a little depressing that this is happening.

We were getting ready to go to bed last night - or this morning - at 12:30 a.m., and Bailey perks up and says, "Can we go get a Big Mac?!" Like I'm supposed to say no to that! She just reached 60 pounds again 2 nights ago! We're so excited - we celebrated a little. (She weighed in at 70 pounds when we were admitted back in January; lost 15 pounds right away after surgery from loss of all the fluid; and has been trying to work her way back up. We're getting there!)

Good night, everyone. I miss you all.

Love, Angie

P.S. - Hey, Julie [Norris]! Yes, Bailey would love to get a visit from the guitar player!

7 Comments:

Blogger Annette said...

So glad Dr. T is back - that must be a huge comfort for both of you! Bailey certainly has him wrapped around her little finger! Wait'll she starts dating - she'll have all the experience she needs!!!!

It sounds so cool that at 12:30 in the morning you can just go over for McDonald's. These are "forbidden" foods for most of us, and Bailey needs to pile on the pounds. Congratulations on her weight gain! I hope the food she gets at Riley is better than most hospital food. I don't ever remember hospital food being very palatable! Pizza and burgers are so much better!!!!

Well, guys, have a good day. I'm thinking of ya!!!!

Love,
Annette :)

7:31 AM  
Blogger Aunt Debi said...

Hey Bails! Whats Up? I am glad to hear that Dr.T has returned and you are giving him grief,as you should be, for being out of town. Well, I fianlly decided on your birthday present, with a little help from your Dad, that's scary isn't it? I am saving it for later this summer so you will have to wait. We miss you sooooo much and can't wait to see you. I hear your having some vistors this weekend, should be fun. XOXOXOXOX

7:39 AM  
Blogger Nancy DeCamp said...

Angie - I really appreciate your filling us in. I know I don't post every day, but I do check every day and Angela and I pray for you, Bailey and the rest of the family every day. We want Bailey to get a heart, NOW! I'm sure you get tired of us all saying "hang in there". So we are being very diligent and specific in our prayers for you. I'm glad Marissa's been able to come up and spend time with you. Mike is able to go back to work part time this week. (Yee Haw!) We will see how it goes, but I know mentally he is totally ready. He has been wanting so badly to come up and see you and Bailey. Soon!
Love you!
Nancy

8:12 AM  
Blogger Aunt Debbie A said...

Hey Girlies!

I had so much fun lastnight with you guys. I laughed so hard my head was hurting when I left the hospital. I had to take Tylenol when I got back to the car. It was worth it!! I haven't laughed like that in a long time!! : ) We are such dorks. : )

When I finally arrived home lastnight, my "potatoe chip" was about as big as a hole punch. Do you realize how difficult it is to transport a single piece of Pringle Chip from one place to another? I caught it on my coat, I bumped it on my purse,...by the time I got it home it was so small...but you could still read all the letters "B-R-I-A-N". It was so funny. I handed it to Brian and said, "Here's a gift from Angie and Bailey." You should have seen his face. He thought I was an idiot that I actually transported it all the way home. ha ha I got another laugh out of that. : )

So how did Survivor finish? Who got booted? Sorry we couldn't stay for the whole thing. I won't bring anybody with me next time and we can party til we drop! I'll bring my Patrick Dempsey movie and we can watch it. Wait that means I can't come on a Thursday because we'd have to stop the movie to catch Survivor. "Sound Down! Speak Up! - Sound Up! Shut Up!" Right! For those of you who don't know...that is Angie and Bailey's "spectator code" when Survivor is on. They turn the sound down only on commercials...then you're aloud to talk.
: )

I love you guys. We sure had a good time lastnight. We'll see you again soon.

Love, Aunt Debbie xoxoxoxoxoxoxoxox

1:25 PM  
Blogger Aunt Debbie A said...

Hey Girlies!

I had so much fun lastnight with you guys. I laughed so hard my head was hurting when I left the hospital. I had to take Tylenol when I got back to the car. It was worth it!! I haven't laughed like that in a long time!! : ) We are such dorks. : )

When I finally arrived home lastnight, my "potatoe chip" was about as big as a hole punch. Do you realize how difficult it is to transport a single piece of Pringle Chip from one place to another? I caught it on my coat, I bumped it on my purse,...by the time I got it home it was so small...but you could still read all the letters "B-R-I-A-N". It was so funny. I handed it to Brian and said, "Here's a gift from Angie and Bailey." You should have seen his face. He thought I was an idiot that I actually transported it all the way home. ha ha I got another laugh out of that. : )

So how did Survivor finish? Who got booted? Sorry we couldn't stay for the whole thing. I won't bring anybody with me next time and we can party til we drop! I'll bring my Patrick Dempsey movie and we can watch it. Wait that means I can't come on a Thursday because we'd have to stop the movie to catch Survivor. "Sound Down! Speak Up! - Sound Up! Shut Up!" Right! For those of you who don't know...that is Angie and Bailey's "spectator code" when Survivor is on. They turn the sound down only on commercials...then you're aloud to talk.
: )

I love you guys. We sure had a good time lastnight. We'll see you again soon.

Love, Aunt Debbie xoxoxoxoxoxoxoxox

1:32 PM  
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