Friday, April 15, 2005

Dr. T is back!

Dr. T's back!! All is well again. Bailey showed him her wad of cash she has stashed away, and they started literally playing tug-o-war with it. Dr. T was actually leaning over her bed reaching for her hand behind her back when he said, "Give it up! You can't win! I'm more mobile than you are!" At least they're entertaining. He loved his lava lamp. He really thought it was cool. But then he was eyeing Bailey's glitter lamp (like a lava lamp but there's little squares of glitter instead of lava floating around in there) - I told him that wasn't manly enough for a bachelor pad. I think he was disappointed. I have Bailey's picture she got taken with Reggie Miller (2 days before Christmas when we came to talk to the doctors about this whole thing) sitting next to her glitter lamp. Dr. T says, "Oh, I see Reggie made it by. Good." I said, "No, that was taken back in December." There he goes mumbling again. He said, "Oh, well never mind . . . [and it got worse and worse]." Bailey was preoccupied at the moment speaking with her nurse Beth, thank goodness. I guess he's trying to get Reggie to come and see her. I just laughed and said "You know, I actually understood every word you just mumbled." We had a good laugh over that one. Bailey made her opinion known to Dr. T about the doctor that was supposed to be checking in on her and recycling the Berlin Heart while he was in California. (We only saw him twice during Dr. T's absence.) Dr. T walks in today and Bailey says, "Boy, you really picked a good one to recycle my pump while you were gone!" I think Bailey's running this place.

Marissa gets to spend the day with us again tomorrow. We had such a good time yesterday. We played games and colored and watched movies and ate McDonalds for lunch and for dinner! Thank goodness for their salads.

There's a little boy about Bailey's age two doors down who must have just gotten a transplant. There's a sign on his door that says "Post Cardiac Transplant Precautions . . .". I wanna have that sign and I want it now!! . . . Whew!! I feel better now. Just had to let it all out.

Bailey's fish is still alive! I'm so proud.

Bailey felt great today. She woke up without nausea and without a headache! I did talk to Child Psych today about the girls not getting along too well with Bailey right now. They said they see that a lot in families of cancer patients who are in the hospital for months at a time, so they were not surprised at all that our family is experiencing the same kind of thing. She is going to look into a psychological explanation but she made me feel much better - that it's perfectly normal and will not take any time at all to return to normal once we get home. I pretty much expected that. It's just weird - our family has always been really close and its so strange and a little depressing that this is happening.

We were getting ready to go to bed last night - or this morning - at 12:30 a.m., and Bailey perks up and says, "Can we go get a Big Mac?!" Like I'm supposed to say no to that! She just reached 60 pounds again 2 nights ago! We're so excited - we celebrated a little. (She weighed in at 70 pounds when we were admitted back in January; lost 15 pounds right away after surgery from loss of all the fluid; and has been trying to work her way back up. We're getting there!)

Good night, everyone. I miss you all.

Love, Angie

P.S. - Hey, Julie [Norris]! Yes, Bailey would love to get a visit from the guitar player!

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