Marissa Spends the Day With Us

Marissa spent the day with us today. She walked in about 9:00 this morning and crawled into bed with me and we cuddled together for a little while. It was sooooo nice! She's such a sweetie. She's been spending the days with her twin cousins, Emily and Lyndie, since we've been in the hospital. Thank you, Jim and Robin, for taking care of her while Tom's at work. She loves coming over - even when they fight like sisters! Bailey woke up without a fever but with pretty bad nausea. It passed by lunch time. Due to the fever she had last night, they came in to check out her Berlin Heart sites and her PIC line site to make sure there was no sign of infection. They also did a chest X-ray and looked in her ears - all for the same reason. They didn't find anything, which is really good! It probably means it's all from the IVIG medication. So, great there's no infection, but bummer since she'll be getting the IVIG at least twice a week. Bailey's doing great on her homework. She finally got assignments in all her classes from school, and she's been working hard on getting those done. I'm really proud of her. So she has difficulty sometimes being motivated to do homework - who doesn't? I think I'm going to talk with the Child Psych people tomorrow about Bailey and her relationship (or lack thereof) with her sisters during her extended hospital stay. Whenever the girls visit, she clams up and pretty much snaps at them when they try to talk to her. And at the same time, Josie, at first, was overwhelmed with all the hospital stuff and didn't really know what to say to Bailey or how to act, but now that she's getting used to it, she doesn't really want to talk to Bailey for fear of getting snapped at. It's not bad, it's just obviously not the relationship they had at home. And it probably won't take any time for it to get back to normal after we get home, but it just saddens me to see them uncomfortable around each other. Tom says it might be because Bailey has me to herself all day long and gets a little territorial when the other girls show up. I just want everybody to be happy, darn it! Dr. T is supposed to be flying in tonight. I tell ya, it's not the same around here without him to push around. Haha! We picked him up a lava lamp for his "bachelor pad". Will Smith's character in Shark Tale says every bachelor needs one, and that's the part of the movie he was watching when he tracked us down on the Hollywood Movie showing of Shark Tale last week. He said he didn't have one, so he has one now! At least we got him a blue one and not a pink one - he should be grateful. We've been here 76 days today. Don't have any idea how much longer we'll be here. Please continue to pray for the donor and his/her family. Catch you tomorrow! Angie