Tuesday, November 13, 2007

What a Network of Support

You guys are the best! Thank you so much for all your words of support, well wishes, and just plain love. You guys are amazing. You have no idea what it means to us to know that you are all in this with us. You guys have mown our grass, brought meals to the other half of my family, brought us meals here at the hospital, send Bailey part of your Halloween candy and one of your very own little stuffed animals, think about us every day, and pray for us every moment of every day. What more could we need? Thank you all so much. We appreciate each and every one of you . . . even those of you we don't know and may never meet. You all have a very special place in our hearts.

Bailey's cardioversion went well today. It only took one try, and they were also able to get her PIC line in while she was under anesthesia. That is a big deal to us - Bailey gets so stressed out for those since she had a really bad experience with one back in the Berlin Heart days resulting in temporary injury to her left arm. We so appreciate the special arrangements they made to get that coordinated with the cardioversion. Since after the last cardioversion (Friday) she was only in sinus rhythm for 45 minutes, I've been holding my breath all day and trying to keep from staring at the green number on the heart monitor. Our resident came in just a few minutes ago (she normally doesn't come in this late at night) and I had the urge to run and brace the door and not let her in because I just had a feeling the words coming out of her mouth were going to be, "Bailey, you're in flutter." But I thought better of it since I was sitting with Bailey on her bed at the time and any number of her IV lines could have gotten tangled around one of my appendages . . . and that would not have been good. But she didn't have any bad news to give us anyway - she was just checking in. She said herself that she was trying not to stare are the monitor all night. Ha! I'm not the only one holding my breath.

She's been pretty tired today and a pretty good cough (still not sure if from a cold or from heart failure) and lots of bloody noses. They're not giving her a blood thinner anymore for now in hopes that her blood will thicken in time for a surgery on Friday or Monday. Still not sure when it will be. I don't think Dr. T likes Friday because of a lighter weekend crew but don't know if they want to wait for Monday. We'll see. We're just hoping she stays in rhythm until then.

I came back from dropping Bailey off at her procedure this morning and Tom and I just glanced up to the noon news to see "Adams Elementary Evacuated" and then they moved to the next story. Well, that's Marissa's school! We were on the verge of getting all panicky -- you know, you guys say how strong I am but I think that would have probably been my limit if something bad would have happened at school -- and Tom made some calls and found out that it was just a paint fumes issue. The kids were taken to the high school for the day where they would be picked up and taken home at their normal time, or the parents were invited to pick them up if they wished. When they came to visit tonight, Riss said, "Mommy, we had an unscheduled field trip today!" Haha! She was cute - they had a lot of fun playing and watching movies at the high school. I just thank God it was nothing more than paint fumes.

Mom brought by a printout of an inspirational e-mail today and I found exactly what I needed in the small print at the end: "Instead of telling God how big your storm is, tell the storm how big your God is." Ahhh, that's exactly what I needed to hear today.

Good night.
Angie

37 Comments:

Blogger Grandma Carol said...

Yeah, Rah!!!! Way to go Bailey! What a great update! We've all been holding our breath and you did it -- you stayed in rhythm! Way to go!!! And--Angie, what a beautiful quote!! I love it! I have been thinking all day about what a "BIG" God we have and the fact that He never leaves us! It reminded me of The Footprints in the Sand! That's where you and Bailey are right now! Still believing for that miracle!!! Love you both and will keep you in our prayers and thoughts always! Love you loads! Grandma Carol and PaPa Tom.

11:43 PM  
Blogger Aunt Vickie said...

Footprints is one of my favorite poems and I've been thinking about it all week. We all love you so much it's hard not to think about you every minute of every day. My boss is probably about ready to throw me out. I just hope I'm not goofing up too much. We are all praying for you constantly.
Love you so much,
Aunt Vickie

5:44 AM  
Blogger Aunt Vickie said...

P.S. For all of you blog readers out there who read this blog faithfully, if you can, post a quick note and let Angie and Bailey get a glimpse of how many are out there. Even if they (we) don't know you, we know you in our hearts. Thanks to all of you who pray daily, we all love you too.

5:47 AM  
Anonymous Anonymous said...

Ditto what Aunt Vickie said. I wonder if this Blog could even support the comments of the many people who read this Blog but just don't post a comment. There are many people who don't even have computers that call to have the Blog read to them. I'm so glad the cardioversion/pic line went so well. One victory at a time! Love you so much Bailey and Angie (and Tom, Josie and Riss).

Aunt Robin (Uncle Jim, Erica, Emily and Lyndie all send their love too)

6:18 AM  
Anonymous Jill Simpson said...

Okay, as requested, I am sending my first comment. Yes, I do read the blog first thing every day for an update. I have never had anything particularly eloquent to say, so I have just remained silent, but your entire family is never far from my thoughts. Wishing you all the best with the next procedure.

6:52 AM  
Anonymous Anonymous said...

You guys ae in my thoughts and prayers, God bless all of you, Mary Anne Melvin Dane's gr-grandma, Fort Wayne, Indiana

6:57 AM  
Anonymous Anonymous said...

Angie and Bailey,
So many of us here at R&L (probably all of us) read the blog daily, share your latest news when we have a chance and pray constantly for you. I'm continually amazed at your courage and strength. Last evening I just had a strong feeling come over me that everything was going to work out great with the upcoming surgery. It was very comforting. I pray you feel that comfort also. May God wrap His loving arms around you and give you strength and peace.

With Love and Prayers,
Carmen Pahud & Family

7:36 AM  
Anonymous Brenda said...

I too read the blog every day and just want to thank you for sharing and including us with your thoughts and concerns. We share them with you and stand behind you 100%. Love, Brenda

7:58 AM  
Blogger LindaC said...

Hi Angie & Bailey and Family -- I, too, read the blog and just wanted to let you know that you have constantly been in my prayers. Sure hope you stay in rhythm Bailey and that you guys have a wonderful, peaceful and blessed day!! Hang in there - we love you guys and miss you.

8:04 AM  
Anonymous Anonymous said...

Angie, Bailey & Family, I read your blog daily and this is my first post. I think about you guys daily and cannot start my day until I have read your post. Bailey, you are a courageous young lady. The strength that you have and continue to show is an inspiration. You have my continued thoughts and prayers. Jennifer Niederriter

8:32 AM  
Anonymous Anonymous said...

So I woke up this morning to a be-bopping tune on the radio..."she's a bad mama jama"....and I thought, "yes my Angie and Bailey girls are!" I laughed out loud and my little dog looked at me like I was nuts. You girls just keep on holding on to each other and God will see you through!

All you bloggers out there....let's shoot for 100 people responding and show them just how much they are loved!

Love to you my Angie Girl!
Mary Ann

8:34 AM  
Anonymous Anonymous said...

Dear Angie & Bailey:

You two are such a large part of so many lives (and especially mine)and have so much love and faith directed to you.

Susan keeps up on all of the news about her "other" sister and niece, but won't send a blog. She just makes sure I do.

Love & Prayers, CAROL

8:59 AM  
Anonymous Anonymous said...

Good morning or evening! (depending on when you read) I can't go a morning without knowning how you girls are holding up! Bailey I hope that you stay in rhythm as long as they need you to - although I know you have no control! My thoughts and prayers to you girls!!!
Lots of Hugs and Kisses! Marsha Hetser

9:10 AM  
Anonymous Anonymous said...

Angie... What a great quote. God is much bigger than any storm. You and your family are in my prayers daily.
I keep my boys updated. Daniel and I went to a sneak peak of the movie Beowulf last night. His English teacher gave out free tickets since they had wrote a paper this term about it.
Please remember that so many are praying for Bailey and all her remarkable doctors.
Janet Shelton

9:14 AM  
Anonymous Anonymous said...

Bailey, you are my hero! Hang in there sweetie and God will get you through this.

9:21 AM  
Anonymous Anonymous said...

Angie ~ As I read through the posts, I am reminded of the wonderful group of friends and co-workers you have at R & L. They are lucky to have you and vice-versa! I'm relieved that Bailey's procedure went well, and along with so many others, I will continue to pray for your family! Love, Teri Margason

9:21 AM  
Anonymous Anonymous said...

Angie & Bailey,

A day doesn't go by when I'm not thinking about the two of you. Stay in rhythm Bailey! My thoughts and prayers are with you both!

Linda Jones

9:30 AM  
Anonymous Anonymous said...

We are always reading and checking up on you guys! Your entire family is in our prayers . . please let us know if there is anything we can do!

The Casavans - Kara, Jami, Katie, & Cooper

9:42 AM  
Blogger carmelapples said...

Morning Glories,

My post got bumped this morning...I think maybe this blog is burning up with traffic! Yay!

You would not believe how much your obviously renewed strength and peace have encouraged me this morning. God is encouraging us by encouraging you by doing "His thing" that He does so well! My heart is so refreshed by your words today.

You know those days when your heart is so heavy and you just can't find the words to pray specifically because you don't know what to pray for that's new? Well, I came up with a little acronym between me and God...anyone else wants to use it please do...He's already familiar with it! ha ha I just whisper "HELP, God" several times a day. And He knows the specifics I have in mind for you. H - is for HOPE, E -is for ENCOURAGEMENT, L is for LOVE (His love will comfort you more than all of us put together), and P - is for PEACE and PROVISION (ok..so I snuck in 2 things for the last one...it's ok...He can keep it straight).

We are advancing in this fight together and I'm pretty convinced that God has just refreshed the troops!

Love you both so much. See you soon.

Deb xo xo

10:06 AM  
Anonymous Anonymous said...

Dear Angie and Bailey,
I wanted to let you know how inspiring you both are to me and my family. You are on my thoughts and in my prayers through out the day. Thank you for being for being so real with us in your blogs, it truly has helped my faith to grow.
Much love,
Heather W. and family

10:15 AM  
Anonymous Anonymous said...

Great news! Thanks! We were all praying for such an outcome. Hopefully when you read this - today will go even better. The surgery timing will be perfect. (you can tell Dr. D &T I said so) Even if we don't have exact control over things - you are right - God Does! Good for little miss Rissa yesterday! Mike called and talked to Tom last night and was shocked over how grown up she sounded when she answered the phone! Hang in there!
Love,
Mike, Nancy, Angela & Andrea

10:19 AM  
Anonymous Anonymous said...

Angie & Bailey:

I'm so glad the procedure went well yesterday. Hopefully it's a sign of things to come during the next surgery. Like everyone, I'm always thinking and worrying about you, but I know that you are in the best possible place right now with the best doctors there are!

Oh, and to Vickie, I really DON'T think your boss will fire you. Nope, just don't think she will.

Love 'ya

Lara

P.S. I really did leave a comment yesterday, but it seems to have disappeared. I was having computer problems...must have been it!

10:55 AM  
Anonymous Aunt Robin said...

Hey guys! We love you all so much and you are in our thoughts and prayers continuously! I even have people at work Angie who pray for you and ask me how Bailey is doing on a regular basis! Hugs and kisses to you both and we'll see you soon.

11:16 AM  
Anonymous Anonymous said...

Angie & Bailey,

I have your blog in my favorites and read it (at least) once a day. You are such a strong and wonderful young lady. And I hope that you stay in rhythm for more than an hour this time! Warm well wishes on your upcoming surgery. You'll be just fine. Your doctors are the best!! With kind regards, Sara in MN

11:17 AM  
Anonymous Anonymous said...

Hello Angie & Bailey-

Angie it was so nice to talk to
you. Although, we could have done without the school incident. At least it was the fumes. We are here
for you and will be praying for
all of you in the days to come.

We love you all-

Mark, Dee & Kids
Jeremiah 29:11

11:39 AM  
Anonymous Anonymous said...

Bailey and Angie and all your family, you are in my prayers and thoughts. God has not brought you this far for nothing, He obviously has a very special plan for you Bailey. I met you briefly when you were in for the Berlin and I was doing a practicum for my masters degree. Bailey, I know you like music, I am a singer and have a CD I would love for you to have. I am on campus quite a bit and when you are up to it, have your mom email me and I would love to stop by.
michelle
mruben@iupui.edu

1:10 PM  
Anonymous Anonymous said...

Bailey-

My thoughts and prayers are with you....You are a true inspiration to all!

1:32 PM  
Anonymous Anonymous said...

Hi Girls: Wanted to say hello and let you know I am thinking about you! Love and prayers, Lori

1:40 PM  
Anonymous Anonymous said...

Bailey & Family,

You don't know me, but I think about you everyday. Please know that my thoughts and prayers are with you.

Jenna Barnett & Family

1:55 PM  
Anonymous Anonymous said...

Angie and Bailey-

Every time I read this blog, I am amazed at your strength. So glad Bailey stayed in rhythm. We're praying for you. Thank you for being an inspiration to us. Kim C.

3:19 PM  
Anonymous Anonymous said...

Bailey..you are a most remakable example of God's ability to answer prayers. Tomorrow will be yet another demonstration of this. Our prayers will continue until such time as we can simply thank him for bringing you and your family thorugh this.

Angie, know that you are missed and that your family is never far from our collective thoughts and prayers.

Brock

4:27 PM  
Blogger mumtosophie said...

Hi Angie and Bailey, I have been following yur story now for some time, since the Berlin heart days.I pray that you both feel the Love of so many who are praying and willing the Best for you guys. May God continue to give you the strength to face the day to day struggles of being in hospital ,of family being apart and the uncertainty.
Joanne H and family from Australia

5:15 PM  
Blogger Rev. David Evans said...

Bailey,
You are in my prayers along with your mom.
Rev. David Evans(your old preacher).

6:01 PM  
Anonymous Anonymous said...

Bailey & Angie:

I am a friend of Carol Williams. Even though I do not know you,I feel as if I do with the information Carol has sent to me. I include you in my prayers. Thought of you when I read this inspirational message by Emily Matthews and wanted to pass it on to you.

LIFE'S PATHWAY
At times, life's path
seems filled with things
that make the going rough,
And we wish there were
a smoother road, for we
feel we've had enough....
BUT, if we pause a moment
and remember WHO'S in charge,
The hills that loom ahead of us
no longer seem so large.
You have overcome so many things,
so as you face the future,
know GOD will guide you and you
will have strength to win.

God bless you.

Barbara Strickler
Syracuse, IN

6:22 PM  
Anonymous Anonymous said...

Still check on you every night before we go to bed. We continue to pray for you and your family. I have the utmost confidence in Dr. Turrentine and your whole team. You are the hands down most inspirational family I have EVER met.

Lynn, Josh and Dane Farlee
Fort Wayne, In

6:27 PM  
Anonymous Nancy Hobbs said...

I'm still praying; haven't stopped. Jesus will be with you and take care of you! From the looks of this blog, Heaven will be bombarded with prayers throughout the day tomorrow as well.

6:32 PM  
Anonymous Danny R. s. said...

glad to hear things are improving a little.

7:31 PM  

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