Up Another Pound

Wow. Bailey just can't seem to lose her fluid. She weighed in another pound heavier this morning. She's off her I.V. milrinone and they're talking about sending her home tomorrow if she does well overnight. Again, she's feeling good except for her belly. It's just so big and uncomfortable. Dr. D did an echo today and said her heart function is stable - and says that getting this fluid off will be a long, slow process. If her weight goes up again in the morning, I don't know how comfortable we're going to feel going home. I just pray that her weight goes down.

Thank you for all your comments out there. It's good to hear from you "Nightline viewers". I am not surprised at all that Bailey has touched your lives. She seems to have a special purpose in this world - she is an infectious young lady. She has such a positive attitude and makes the best of every situation. She doesn't complain - just waits it out patiently - praying along the way. Such an honor to be her mother. And the patience and love that Josie and Marissa show is also incredible. They are home with Tom trying to live a normal life, as best they can. I know they miss us and we miss them. I am so torn. I would like to stay here as long as possible to get fluid off of Bailey, but we also want to get home to enjoy Marissa's birthday and the fall weather. We just don't have any control over anything right now -- well, except for her low-sodium diet which we're doing a really good job of -- so we just pray and take one day at a time. We know we're in the best possible place that we can be.

Bailey's friends, Paisley and Brian, came to visit tonight. It was so good to see them and so good to see Bailey hanging out with her friends. It was a good evening.

We'll keep you posted.
Good-night.
Angie