Saturdays = Play Time

Boy! Weekends are a lot different than weekdays around here. Dr. T came by to recycle the Berlin Heart, but we didn't see a single other medical person other than Bailey's nurse all day. So, that gave Bailey and her nurse, Leslie, a lot of time to play . . . and that's what we did! They made oragami animals; searched on the internet for jewelry ideas; we helped Leslie figure out how much to charge for jewelry she's making for a wedding; they played with bubbles all afternoon catching them in their mouths and discovering new bubble-making instruments (like linen yarn used to tie clean bedding, and their own hands) (they even ran out of bubble liquid and had to make their own out of dishwashing soap); Leslie taught Bailey how to read her medical chart; we watched two movies . . . and that pretty much sums up the day. The days really do go fast around here. We got some sad news today. I reported on a code blue they had last week here on the Heart Center and we subsequently found out that it had been Gabby, a little 4-year old girl who would come by and wave to Bailey. We didn't know her, but we waved to her all the time when Bailey was in isolation. After the code blue she was sent down to ICU. We just found out that she passed away a few days ago. She came in for a regular check and they just happened to find that her pacemaker wire was broken, so they went in to fix it - apparently a not-so-risky procedure. She was up here for a while when her heart suddenly stopped (code blue), she was sent to ICU and she just never really got any better. It's just evidence that when it's our time to go, we're going to go. That actually gives me comfort - that God is completely in control and all we can do is pray and enjoy each and every day with one another. (Of course, there's that utter fear that can well up if given an opportunity that any of us can go at any time. But faith and hope keeps that fear in check.) It's a strange thing being in this situation with Bailey. It's like we're part of a new social club of transplant patients. It's just that I've never been in a club where death is such a visible factor. It really makes you appreciate things you would normally overlook and helps you put priorities in order. Bailey's pushing me out the door tomorrow. Aunt Vickie offered to come over for the day so I could go home and do some laundry, and Bailey was so excited about it, so she told me to go home. Haha! It's not quite that blunt, but I've been teasing Bailey that she's shoving me out the door. I'll be back in the evening in plenty of time to post another message. I'm also planning on putting more photos on here tomorrow. Have a good weekend everyone, hug your friends and family, and I'll see you tomorrow. Love, Angie