Tuesday, March 15, 2005

Don't Cry Over Spilled Milk!

What a fun day! After Bailey's schoolwork, we were able to go down to the atrium for a painting party. They hung a tarp down from the 2nd floor balcony, and the kids took syringes filled with paint and squirted them on the tarp. It was so fun! But Bailey nearly missed. She came within inches of hitting the stuffed Nemo sitting on the 2nd floor! Then we walked to the library (she even pushed the Berlin Heart herself - it's heavy!) where she did some research on England for a report in social studies. When we returned to Bailey's room, we then had some special visitors. And, Corbin, it was soooo nice to meet you! Bailey really enjoyed your company, and we can't wait to see your farm. Hope to see you again real soon.

Then, we got to meet another transplant patient - Taryn is a 20 -year old gymnastics coach from Purdue. She came to visit with her boyfriend, and gave us lots of insight as to what we might expect. She's such a sweetheart, and Bailey really enjoyed meeting with her. We have her phone number and she told us to call whenever we have any other questions or just to talk.

Scott ran into Dr. Darragh on his way up this evening, and he said Bailey's antibodies went down. (That's good - that means she's less likely to reject her new heart.) However, Colin and Taryn have both gone through several bouts of rejection, and we've been told we'll go through it too. Most of the time it will just mean a medication adjustment, but, of course, there are different levels of rejection. Colin is just getting through "major" rejection and Taryn said she goes through it about once a year. It used to upset her and she'd cry for hours, but now she's beginning to get used to it. (She was transplanted when she was 12.)

It sounds like Qudrat (the little Afghanistan boy) is moving to the Ronald McDonald House tomorrow. He's doing great!! He had his surgery just one week ago.

Bailey just spilled milk all over her bed. Gotta go!

Angie


6 Comments:

Blogger Aunt Debbie A said...

Hi Girls!

It's getting light out and it's only 6:30am!!! Yea!!!!! I'm sure you guys are up and goin' at it already...NOT! : )

Sounds like you've been meeting some pretty cool people. We're planning to come Thursday evening again...that is...unless somebody gets sick!! : ) Let me know if anything particular sounds good! Kelly and Bella said they were by to see you. I'm glad they got a chance to come. Bella's been wanting to come since you had surgery.

We'll see you Thursday! I'll call before then. Love you both! xoxoxoxoxoxoxo

6:43 AM  
Blogger Nancy DeCamp said...

Wow - sounds like a fun but busy day. I'm glad you are getting to meet so many cool people and do so many cool things. We continue to pray for you every day.
Love,
Nancy

8:41 AM  
Blogger Robin said...

Bailey, you sure are building up a network of transplant buddies. What wonderful support they will be for you. Sounds like these are going well, and we're very proud of you--hang in there! Uncle Jim is coming to visit after work today. I've got to go now. Rissy just got here with the biggest Care Bear I've ever seen. We could barely see her at the door because it's bigger than she is. We love you lots Bails!!

9:24 AM  
Blogger Aunt Debi said...

Hey Bailey: Its sounds like you are busy as usual, glad to hear you are keeping up with your school work, you must love that. I wanted you to know that Uncle John and I decided on the Newfoundland. He is a male and we are picking him up the 1st weekend of May. I can't wait for you to meet him, he can sling his drool up to 20 feet, pretty cool huh. We are going to name him Beauregard and call him Bo for short. Thats my exciting news. I can't beleive you are going to be thirteen soon, UGH! A teenager. I am trying to think of fun things for your birthday, got any ideas? And don't say no because I know you and you always have a list! Lots of Love to you sweetie, we keep praying for your new heart.

9:28 AM  
Blogger Annette said...

Bailey - it's wonderful that you're meeting other kids who have had transplants. They'll be a big support system for you. Plus you have an AWESOME family! I love reading what your aunts have to say - you really are blessed!

Angie - I plan on coming down again as soon as my mother is settled in her new apartment! I took her shopping tonight at Bed Bath & Beyond and we bought so much neat stuff for her new place. She's moving in on Saturday.

When is Bailey's birthday?

Well, you guys take care and keep up the good work. I'm glad about the little Afghan boy - he must be recovering very well.

I'll keep praying for you both and hope that Bailey will be out of the hospital soon and jumping through hoops!!!!

All my love,
Annette :)

10:04 PM  
Blogger The Norris Family said...

Hi Guys!

Chicken pox- oh no!

That reminds me of year had a Christmas party with all the kids in the neighborhood at our house. We probably had 15 kids. Taylor was about 4. The next day she woke up woth chicken pox. I had to call all the parents and warn them not only did the kids get a surprise from Santa probably Taylor too! Ha HA

Have a great day!!

9:59 AM  

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