Tuesday, March 08, 2005

A Slow Day Today

Today didn't seem quite as busy as a normal weekday. I think it's because of spring breaks. We finally got Bailey's science and social studies homework from the last six weeks over the weekend, so now we're beginning work on catching up with school.

Colin, the transplant kid we met last week, popped in again today. He and his family are so nice. It's incredible how much he and Bailey have in common - not only their medical history but also their likes and dislikes. They both love crab from Joe's Crab Shack; they both like to pick at themselves (like dry skin, lips, etc.); X-Box games; etc. He saw Bailey's birdhouse she build last week and said "I have about 20 of those at home." He's had about 25 surgeries in his lifetime. They gave us their phone number and they want to be called when Bailey gets her heart. We come away so encouraged after talking with them.

We made another 10:00 p.m. run to McDonalds for Apple Dippers - Bailey walked with me this time. She's even standing up straighter when she walks now. She still just seems to be doing better every day. I'm so proud of her. We are truly blessed.

Thank you to all of you who want to visit but haven't because of sickness. We really can't afford Bailey getting sick since a heart could come at any time. I also found out that a heart has to be transplanted within 6 hours of being taken from the donor. Wow! That's incredibly fast. They say we'll get a call any time of the day or night saying they found a possible match and they'll take Bailey to surgery where we'll wait on another call after final inspection of the heart saying yes or no to prep her for surgery. What a trip that will be, huh? Colin's dad said transplant surgery only takes 4 or 5 hours. He tells us that going through these last 6 weeks is the hardest part - it only gets easier from here. That's hard to imagine, but I'm thinking positive about it!

Well, I don't know about Bailey, but I'm ready for bed!

We'll, of course, talk to you tomorrow night. And while you're saying a prayer for Bailey, please also pray for the donor's family - I hope we never find ourselves in their position.

Love, Angie


24 Comments:

Blogger The Norris Family said...

Bailey,

It was good to see you last night! Hey did you hear Mimi Pierce (sp?) say hi to you on this mornings (tues) news. I was getting ready for work when I heard them say Hi to my friend, Bailey, at Riley. Didn't know you were a star!! Have a good day,

Julie Norris

7:08 AM  
Blogger Nancy DeCamp said...

WOW! Now you are not only meeting the movers and shakers, you are being mentioned on the radio by them!!! I'm glad you have met Colin and his family. God always finds a way to put the right people in our lives at the right time. Right, Angie! FYI - Mike is at home on short term disability right now. They determined he has a herniated disk in his neck. So he has a real pain in the neck. (and it is NOT me! HA!) We continue to pray for you, and we will pray for the donor's family. Angie, your unselfish heart continues to challenge and inspire me! Love you and I hope to see you soon!
Nancy

9:23 AM  
Blogger Aunt Cindy said...

We enjoyed our visit with you soooo much yesterday! Visiting you was the first thing on Craig's list of things he wanted to do during his short spring break. Obviously he thinks you are a pretty special gal! (And so do we!) A friend of ours sent me an email to say they continue to pray for you and check your website every day. And at the end of her email she wrote, "you must feel privileged to be aunt to such a special girl." I most certainly do!!!!!!
So how was the trip to the library and the start of your France project? If you were studying Italy I could have sent you a big bar of Italian chocolate that one of the professors just brought back for me. Maybe you could still use it and say it is from France's neighboring country? Let me know and I'll send it via campus mail if you want it. You could of course then eat it after the project is graded!
Mark your calendar - the IU game is Friday at 2:30pm on ESPN. You can make a big sign for your door that says "Game in Progress - Enter only if you cheer for IU!"

One more thing, while you are saying your prayers would you please pray for a little boy named Calvin Sims? He is 3 yrs old and has a rare brain cancer. He may be at Riley, too, but I'm not sure. I know that you care so much for other kids that are going through struggles, so I thought you might want to pray for him.

I had a thought about something we could do with your chart of nasty meds that your dad came up with. You could see how many of us out here in blog land would pledge money (we can call it a med-a-thon or something), and then all the money you raise can be donated to the Riley Heart Center. Of course the money from your dad should be your personal stash to spend on make up, jewelry, etc. or apples for your horse! (The make up, jewelry , etc. would be for you, not the horse, of course!) Just a thought. Would be even more of an incentive for downing the not-so-good-tasting meds. If you decide to do that, post something on the blog and I bet you would be surprised at how many people would participate. It would be like a huge cheering section each time another dose is due!
Does this thing have a limit on how much a person can write? Apparently not or it would have shut me off by now, huh!?

Love you!

12:00 PM  
Blogger Jeff, Cindy, Joy, Jeremy& Patti Miller said...

Just want you guys to know we are praying for you. Bailey, I fill a lot of prescriptions for the Methodist Heart Transplant Patients. They all seem to recover amazingly well.. We have many of the first 100 heart transplant patients as our customers. We will keep reading. Thanks so much for all of your updates!! Hope you had a great time with Mallory the other night. Love Cindy Miller

12:27 PM  
Blogger AuntieJean said...

Hi Bailey,

I am so glad for this web site. I think your Grandmother (Phyllis) was getting tired of me calling her every couple of days to see how you were. I check in on you just about everyday to see how you are progressing.

Every week I go to church, someone asks how you are. I now carry one of the pictures that were taken at Thanksgiving, so everyone can see what a pretty girl you are.

If you have nothing better to do this afternoon, I could use someone to help me shovel snow. Are you up to it??? We were only to get a coating, but we already have 3 inches.

Love to you and your parents,
Auntie Jean

1:24 PM  
Blogger Mary Ann Lucas said...

Hi Bailey and Angie! Thanks so much for your continued updates and information sharing. Sure wish I would have been listening to wfms this morning. I could have shouted out my window "I know that girl!"... and she is mah-velous! Her Mom is pretty great too!

I am going to be out of town until next tuesday, but I'll check online while I'm gone and continue praying for you and your patient wait for a new heart. The donor family will most certainly be very special and loving to give of something so precious during their own time of loss. We will all pray for their hearts to be healed by giving their generous gift to you.

You be a good girl and keep your Mom in line. I am thinking of you every moment of every day.

much love to you...Mary Ann

3:20 PM  
Blogger Mary Ann Lucas said...

Hi Bailey and Angie! Thanks so much for your continued updates and information sharing. Sure wish I would have been listening to wfms this morning. I could have shouted out my window "I know that girl!"... and she is mah-velous! Her Mom is pretty great too!

I am going to be out of town until next tuesday, but I'll check online while I'm gone and continue praying for you and your patient wait for a new heart. The donor family will most certainly be very special and loving to give of something so precious during their own time of loss. We will all pray for their hearts to be healed by giving their generous gift to you.

You be a good girl and keep your Mom in line. I am thinking of you every moment of every day.

much love to you...Mary Ann

3:21 PM  
Blogger Rev. Evans said...

Hi Bailey
I was planning to see you this week, but I have been sneezing a lot, and my wife has a really sore throat. I have been seeing a lot of sick people in the hospital with flu. So I will not come to see you this week, because I don't want to take a chance that I would pass something on to you. Just know that you are in my prayers and you are always on our prayer list at church. I try to give a report on your progress each Sunday. Hopefully I will be able to see you next week. Angie, I am going to send a progress report to the Jamaica Medical Team.
Rev. David

4:07 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

Love,
Annette :)

8:22 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

Love,
Annette :)

8:22 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

Love,
Annette :)

8:22 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

Love,
Annette :)

8:22 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

Love,
Annette :)

8:23 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

Love,
Annette :)

8:23 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

Love,
Annette :)

8:23 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

Love,
Annette :)

8:23 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

Love,
Annette :)

8:23 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

Love,
Annette :)

8:24 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

Love,
Annette :)

8:24 PM  
Blogger Annette said...

This comment has been removed by a blog administrator.

8:33 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

8:35 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

8:35 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

8:37 PM  
Blogger Annette said...

Hi Bailey and Angie! I don't have a lot to say except I am still praying for you and hope you get your new heart soon! I'm glad you have other kids to talk to who have gone through it - you can kind of know ahead of time what to expect. Have a good day tomorrow - it's going to be nasty out so you stay warm and snuggly!!!!

8:37 PM  

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