Tuesday, February 15, 2005

Fever Diminishing a Bit

Today was a good day. Bailey ate a little breakfast and a little lunch - she's in her room now with dinner that her dad brought in for her. She requested beef and noodles. Yesterday she asked him to bring her some of his fried chicken for dinner. She's keeping him busy in the kitchen! Thanks to Carol and Diane, she got her tuna noodle casserole today for lunch that she requested yesterday - thanks guys! (She also liked the grapes. And, of course, I ate 2 of the 3 cupcakes!) Child Life people brought her a laptop today to keep in her room. Unfortunately, it's dial-up and for some reason, we weren't able to pull up this web page. The Riley teachers came by today and schoolwork starts tomorrow. The surgical nurse has arranged for Bailey's best friend Paisley to come Friday night for a slumber party and sleep-over - popcorn, movies, nail-painting, etc. - all the girly stuff. That really lifted her spirits. The surgical nurse also had a heart-to-heart with Bailey today. She is such an incredibly compassionate lady and Bailey has just melted her heart. They talked a bit about what Bailey was scared of (she just had a worried look on her face) and she said she was afraid of a transplant. They talked for a while and it made her feel much better. The people here are so much more than just medical people - I just appreciate so much their efforts to make Bailey feel special and loved. Child Psych people evaluated her today and are wanting to prescribe a mild antidepressant with a tranquilizer so she can get good sleep at night. One thing I've noticed is that she just isn't her bubbly self. I don't know if it's that she just doesn't feel good because of the fevers, or because she's getting little sleep, or that she's worried, or what. But when people walk in to see her (whether visitors or medical people), she pays about half attention to them. That's just not like her. She did tell me she wants to go home, so I'm sure she's getting a little tired of all this. Yesterday I found in the gift shop a little coin that says "This, too, shall pass." That helped me a lot as I was feeling myself like we'll be here forever, so I shared that with her today and I think that helped. Hopefully with some good sleep, the fever goes away, and a little help medically, she'll be feeling a lot better soon. (She also has a sore on her tailbone that's just another little nuisance but they're working to try to get that healed - which is difficult since she's in bed all day except to go to the restroom.)

Well, maybe we'll get on the laptop tomorrow and Bailey can post her own note. I know she would like that. And, Uncle Harlan, it was good to hear from you today! Love you!

Doug Kerr, where in the world have you been these last 25 or so years?! It's good to hear from you! Hope all is well - would love to see you again.

Thank you again, everyone, for all your support that is coming to us in so many ways - we truly feel loved, cared for and prayed for every moment of every day. Love you all!

Angie

6 Comments:

Blogger Annette said...

Angie - Happy Anniversary! I didn't get on-line last night, but I thought I remembered it was your anniversary! Congratulations!

Bailey - your sleep-over sounds like it'll be great! I'm so glad they moved you to the Heart unit! Your nurses sound like wonderful, caring people too. I used to have sleep-overs with my friends when I was your age - we stayed up all night and yakked and played records - it was a lot of fun. I hope you and Paisley have a ball!!!!

I hope I can visit you soon! Keep up the good work - everyone is pulling for you!!!!

Love,
Annette :)

10:05 PM  
Blogger Weaver Family said...

Hi Bailey,

Cassie & Troy say, "HI!" Troy will be doing Jump Rope for Heart tomorrow. He is doing it in honor of you!

Good luck with your sleep over!! Sounds like you'll be getting a spa treatment also.

Keep up the good work! We are all pulling for you.

Cassie will write tomorrow after school.

Love, Karen

11:51 PM  
Blogger Mimi Pearce-Clark said...

Happy Wednesday Bailey,

It was great to hear that you had been moved to the Heart Center. Although we have not met yet, I wanted to let you know I think of you often.
Has Beth Snyder been working with you? I just met her recently and she is a real Gem.
I'm looking forward to the day I can stop by for a visit.
Jim, my son Corbin and I keep you and your family in our prayers daily.
Hang in there.
Take care and Love,
Mimi Pearce

5:16 AM  
Blogger Mimi Pearce-Clark said...

Happy Wednesday Bailey,

It was great to hear you had been moved to the Heart Center.
Although we have not met yet, I wanted to let know you have been in my thoughts daily. I look forward to the day I can drop by for a visit.
Has Beth Snyder been working with you. She is a real Gem. I just met her recently myself.
Hang in there and know that you and your family our in Jim, my little boy Corbin and my prayers daily.
Hang in there and Love,
Mimi Pearce-Clark

5:23 AM  
Blogger Grandma Carol said...

Hey, Bailey! Sure sounds like you are eating pretty good! Sounds wonderful! Also, so glad to hear that the fever is diminishing! Hope today is a much better day for you. What a neat idea - a slumber party with your friend! I know you will have a great time! Here's a riddle to bring a smile to your face.

What is the longest word in the dictionary? (Ans: SMILES. (There's a "mile" between the first and last letter).

Would you like some chocolate chip cookies? Just let me know! I'll sure bring them. Papa and I love you very much and we'll see you real soon!

12:44 PM  
Blogger Aunt Vickie said...

Finally.....I've been trying to post a comment all day and for some reason this thing has not let me. I can't believe you get to have a sleepover! That's so exciting!! I haven't made it to the hospital this week yet because I've had a cough, but I think I have to come tomorrow at least to drop some stuff off. Hey Bailey, how about some chicken and noodles?

The boys are happy to hear you're doing well. We can't wait to see you. Can we come in if we wear masks, or are visitors still off limits?

Know that we love you much and think and pray for you dailey!!

See you soon.
Love Aunt Vickie

7:46 PM  

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