Monday, July 25, 2005

WE'RE HOME!!!

Oh, my gosh! I have my family back again!!

What a day! We woke up this morning at 7:00 when Jenny, our night nurse, came in to say goodbye and, of course, I cried. I love Jenny so much. We've already got plans to go with her to a movie on Wednesday, assuming Bailey's feeling up to it. We had to make plans of some kind just so saying goodbye was more like "see you soon" - that's the only way it was bearable. We then walked down to get a chest X-ray and then an echo, and Dr. Darragh gave his stamp of approval on going home today. So, after lots of discharge orders, dressing change training, medicine schedule, prescriptions, and saying additional goodbyes, we left our room around 4:00. We were walking out the door to the patient pick-up/drop off (with about 10 or so of our medical team seeing us off) and Bailey just stopped right in front of a parked limo and looked around. Tom said, "Where you going, Bailey?" She said, "Well, where's the van?" And right then, the limo driver opened the door for Bailey. It was so cool! She was soooooo excited. I tell you, it's difficult to time it to try and get a limo to the hospital - there's a lot involved in getting discharged. But the medical team worked with us the best they could and we managed to work it our pretty good. He only had to wait on us about 30 minutes. The girls and Nancy and I rode home in the limo. Then, when we drove into our neighborhood, Bailey saw lots of cars lining our street and said, "Man! Somebody's having a family reunion or something." And just then, she saw the "welcome home" signs and all our neighbors and family standing in front of our house. She didn't cry, but I did! We have the best neighbors and family! Thank you so much, guys, for welcoming Bailey home. And thank you for the food we found on our table! You guys are certainly the best! So, the limo driver then took all the other kids on a ride.

Bailey squealed when she saw her room. She loves it! Even though it's not finished, it's close enough that she can get a really good idea of what the finished room will look like. Unfortunately, she didn't have a bed to jump on - it's standing on its side in our living room - but we'll make do.

She's feeling really good today. She's only taken Tylenol with codeine once today and she helped me make dinner. She yelled to me from the family room and said, "Come here, Mom, and let me show you something I haven't done in 6 months!" I walked in there and she was laying on the couch on her stomach! She's so sweet. She really is enjoying being home. She came home with a PIC line, so we've got some special instructions for that. And we have to continue the canula site dressing change twice a day for a while. And we have to take her blood pressure and watch her "ins and outs". We have a follow-up appointment this Friday, and we have lots of numbers in case we have any questions or concerns. I think we're already doing a little better with the separation anxiety. It's just been a crazy time these past 6 months - especially the past few weeks. And to go home just 7 days after surgery is just unbelievable. We have truly been blessed.

Before we left the hospital, we got to take one more ride on the train to Methodist with Dr. T. That was nice. And we didn't even have to rush to an outlet to plug in! We got to visit two adult patients of his who are on VAD's. I hope it gave them some encouragement to see living proof of what the VAD's can do.

Well, I'm gonna go crash on my couch next to Bailey and see if I can get rid of this headache which, I am sure, is just from all the anxiety and excitement that this day has brought. I'll continue to post on a periodic basis, but, I tell ya, this computer is SLOWWWW. We have a dial-up connection. Hopefully soon we'll get a new computer and quicker internet access. But we have lots of time for that.

For some reason, I seem to be having a hard time signing off tonight. I just feel like I want to sit here and talk to you guys all night long. I just can't seem to get enough thank you's out to everyone involved and I just can't seem to express my gratitude to God as much as I'm feeling it in my heart. And I guess this means that our adventure has come to some sort of an end. You would think I would just say "See ya!" and run as fast as I can far away from this situation, but I'm not feeling like that at all. The friendships that we've made this past 6 months are deeper than just the Berlin Heart and a hospital stay - they'll be with us for good! We've got contact information for all our doctors and nurses and, believe me, we'll use it. We're not running from this adventure - we're embracing it to begin a new chapter in our lives. Thank you to all for taking such good care of us. See you again soon!

Love, Angie

23 Comments:

Anonymous Kimberly Utt said...

Amen, and Praise the Lord!!

So glad to hear you are home. We can relate to "missing" Riley, but it is so good to be home!! May God continue to richly bless you both.

Heart hugs,
Chris and Kim Utt
Quentin, Dakotah, Hunter (HRHS post fontan) Cheyenne, and new baby due 9-7-05

9:22 PM  
Blogger Lara said...

CONGRATULATIONS! WELCOME HOME! AMEN! What else is there to say??? I'm so glad you both are home so you can relax and Bailey can enjoy her "extreme room makeover" and recouperate at home and enjoy the rest of the summer!

9:27 PM  
Blogger Mary Ann Lucas said...

Hi girls! I sit hear with wet cheeks and a smile on my face. The only thing I can think to say is "Praise God!". Our gratitude and thankfulness overflows. For every bit of sadness on this earth, there are TRIUMPHS like this that will continue to amaze and sustain us.

I know I've said this before, but I know what it's like to have a Mom like you Angie. My Mom stuck by me through all of my surgeries...She kept my chin held up, wiped my tears, sat endless hours with me and kept my spirits hopeful. I know how lucky Bailey is to have you.

Tally and I are so happy you are home and happy. We are singing praises and dancing all over the house! We will come see you soon.

I love you...Mary Ann

11:01 PM  
Blogger Annette said...

Wow! I'm also sitting here with a a smile on my face. When I read all your blog pages, I always pictured you in "your room" at Riley. Since I've never been to your house, I can't picture it. I guess I'll just have to come and visit!!!! :)

I'm also saying a big "whew"! Believe me, I know what it's like to finally have your child out of the hospital and home. You can't quite believe it. Of course Matthew wasn't in as long as Bailey, but he was in long enough and we were so grateful to have him finally better and where he belongs. And Bailey is where she belongs! You'll have to at least post photos of her new room!

Well, this part of your adventure is over. But knowing Bailey, she will have more adventures - and good ones, at that!

As I just wrote this, about Bailey having good adventures, my lights flickered. I think God was agreeing with me!!!!!

My love goes out to all of you!

Annette :)

11:07 PM  
Anonymous Anonymous said...

Wow!
What a way to start my Tuesday. I have been out of town for a couple of days and what glorious news to hear you are home...Simply amazing! I'll try to call in the next couple of days.
Love to you all.
mimi

4:50 AM  
Anonymous Anonymous said...

So happy for you and your family. God is so gooood!!!!!! I will keep checking on you. Maybe Dane's Mom, Lynn will have your email address so I can keep on knowing what's going on. Love and prayers, Dane's Gr-grandma Melvin

5:07 AM  
Anonymous Anonymous said...

CONGRATULATIONS!
WELCOME HOME!

God has blessed you and is looking
down upon you all!!

He has big plans for Bailey!

Enjoy your summer and the Keith Urban concert, I would love to have tickets just so I could see Bailey enjoying it

Linda

7:11 AM  
Blogger Nancy DeCamp said...

Welcome home! We love you and can't wait to hang out!
Love,
Nancy

7:47 AM  
Anonymous Kara said...

We are so happy to hear that you are home and enjoying being part of your great family again! You guys are amazing! We will keep your continued health and recovery in our prayers!

Kara, Jami & Kaitlin

7:47 AM  
Blogger Martha said...

WELCOME HOME!!!

Thank you for allowing so many of us "strangers" a chance at being a part of your MIRACLE. You have deepened my Faith in our Lord. Your gift of life is amazing. Bailey is incredibly blessed. Enjoy every day....

I cannot wait to read what your girls will do next!

7:52 AM  
Blogger Lori said...

WELCOME HOME GIRLS!!
Bailey, you are amazing. Who would of thought 8 days ago you would be at home. I am so happy for you and Mom being home again with your family.
God has sure blessed you.
Have a great day!
Love and prayers,
Lori

8:02 AM  
Blogger Scott Andrews said...

WELCOME HOME! Its so great that your whole family is home now! Stacey and I are so happy for you and believe all the prayers from everyone have made a difference. My only question is: When is Patrick Dempsey coming to your house? Take care,
Scott

8:35 AM  
Anonymous Anonymous said...

I am just amazed!!!! I'm so happy for you to wake up in your own house and bed, and with your family. What a great way to start out a day!! Congratulations. Kim

8:36 AM  
Blogger Cindy Adams said...

....amen.

9:51 AM  
Blogger Aunt Cindy said...

God is truly amazing! ALL PRAISE AND GLORY BE GIVEN TO HIM! We are so glad you are home, and totally overwhelmed with what God has done! Had we known that there was going to be a welcoming committee waiting for you at your house, we certainly would have been there crying and cheering with everyone! We will come up to your Dad and Nancy's to see you after you get all settled in and rested. Until then, we shout praises of joy and continue to pray for all of you! I can't wait to give you a hug without those crazy tubes and lines!!! Love to you all!!!!!! Aunt Cindy, Uncle Tim, Adam, and Craig

11:19 AM  
Blogger Aunt Debbie A said...

I've been thinking about you guys all day. What a mixture of emotions it must be. I am resisting the urge to call you today like you wouldn't believe, but I thought it might be nice to leave you to yourselves today. What a wonderful time we had yesterday welcoming you home, Bailey. Mal and I drove home and talked about how humbled we felt having witnessed everything that has taken place these past 6 months. Hearing your interviews yesterday for the documentary really put things into perspective. We are so proud of the representation that you will no doubt give to the medical community as well as countless families that will face some similar challenges. You will inspire them all as you have all of us. We love you. Welcome home!
Aunt Deb x0x0x0x0x0x0x0x0x0x0

2:48 PM  
Anonymous Curt & Peggy said...

WELCOME HOME BAILEY!! This was something everyone has been praying for and now it is here. I choked back the tears reading your moms message b/c I know she was fighting them while writing it!
Again, CONGRATULATIONS!!

Curt and Peggy

3:56 PM  
Blogger Indiana Miller Family said...

Excellent News Bailey and Angie. I can't believe this has all turned out this way from when we first met you not that long ago. Alex is in Mexico on a Mission Trip ... but I will give her the update as soon as she gets home! ! ! !

4:32 PM  
Anonymous Bob Badger said...

I have been following your progress every day. I am so happy you are finally home. I have great empthy for your having an electro conversion. I have Atrial Fribralation. I am on cumiden now and be converted in about three weeks. I have had this problem since 1992.

Please excuse the typo errors as I will never be as good as your Mom.
Angie, I hope I will see you when I next visit R&L.

10:10 PM  
Anonymous Great Aunt Robin said...

Bailey I am so glad you are home where you should be. You looked so sweet yesterday walking around your home, almost as if you were getting to know it again. What a cool room!! I bet you can't wait till it's finished (Brittany & Lindsay will be soooo jealous!! ha-ha)
Get some rest and enjoy just relaxing!!
Love you guys loads!!
Aunt Robin

1:08 AM  
Anonymous Anonymous said...

Congratulations Angie & Bailey! I am so happy for you both!!!!

God Bless,
Jessica Watkins

10:09 AM  
Anonymous Anonymous said...

Congratulations Angie & Bailey!!!! I am so happy for you both!!!

God Bless,
Jessica Watkins

10:10 AM  
Blogger Marci H. said...

Congratulations! God is truly amazing! Hope to see you all back in church real soon!

I still cry when I think of you being home. May you continue to improve! Have fun in your new room!!

4:17 PM  

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