Sunday, July 24, 2005

Maybe Home Tomorrow?!

Man! This is moving fast. I know that sounds kind of crazy since we've been here nearly 6 months, but they're talking about sending us home tomorrow (Monday). I made it home this weekend to frantically clean the house . . . and it's probably safe to tell you about a little secret that's been in the works for 6 months. Tom's been re-doing Bailey's room since we've been in here. He's built bookshelves and a window seat along one wall, new furniture, new closet, hardwood floors - the works! We have our own Extreme Makeover Home Edition deadline on our hands. He's home right now with 3 of his friends painting like a crazy man. He told me to pull Dr. T aside and ask him if he can hold on to her for a couple more days to give him time to finish the room! Then he mentioned Bailey and I spending a night at a hotel before we come home. I think I said something like, "Uh . . . No!" He's done an incredible job with it and he's so close to being done. Even if it isn't done by the time we get home, she'll still be so surprised! I can't wait to see her face.

Bailey took her first walk around the Heart Center - without the Berlin Heart - yesterday. She went down her first flight of stairs in 6 months! She's feeling pretty good. Still a little tired and sore, but improving every day. Her rhythm still looks really good too! So far, so good. But the possibility of going home so soon really stirs up some emotions for us. I've already cried tonight saying goodbye to one of her nurses. And Bailey's looking a little sad tonight, and said she's afraid she'll go home and have to turn around and come back. I think just being looked after for so long with watchful eyes and feeling safe and taken care of here at Riley where they jump right on anything that might need attention, I think she might just be feeling a little insecure. And I know what she means! I'm finding myself feeling a little nervous about going home and not having that yellow PA number to look at. We talked about it and decided that our job is twofold: to report any symptoms that might occur so that the doctors can deal with them; and, secondly, to just enjoy every single day that we are given in this life, which is something that we all need to focus on. Sure, we're scared that things might take a turn for the worse when we get home, whether it be a month down the road or 2 years down the road, but we'll take whatever is sent our direction and we are going to do our best to not sit around and worry about something that might not ever happen. That would be such a waste of good life. My prayer, of course, is that Bailey won't have to have any other surgery on her heart for the rest of her life and, not only that, but that it will continue to work like a charm. I think Bailey has really opened the eyes of modern medicine here. This might save countless children in the future from having a heart transplant by the doctors giving the Berlin Heart more time for their hearts to heal. I have a feeling we'll never know how big this medical breakthrough might become, and I also have a feeling we'll never know how big this prayer chain is that you all out there have had going for Bailey.

I can only just begin to thank you all for your prayers. We've all discovered here just how powerful prayer can be. One question I might have for Dr. T is how does it feel to work so closely with God? We all have our faith, and we all want to believe in miracles, but when a miracle happens right before your eyes, it's just spiritually lifechanging. I struggle here with not feeling worthy for all the prayers and for the miracles that God has shown us in the last 6 months, but I just keep telling myself that there's nothing any of us can ever do to earn God's gifts. We just have to recognize those gifts as gifts from God, be incredibly grateful for them, and turn around and give others our own gifts of love.

I didn't mean to make this posting such an in-depth message, but it just rolled off my fingers. I love you all out there so much, and I'll post something as soon as we hear whether we really are going home tomorrow or not. I'm still shaking my head in disbelief. Isn't it WONDERFUL?!!

Rest well everyone . . . we are!



Blogger Annette said...

Angie, I'm reading this with tears in my eyes. For you who have hung in there for months, encouraging not only Bailey but all of us; for Tom, who's got such a wonderful surprise for Bailey; and for Bailey, who will leave Riley with more than she ever imagined.

Of course you deserve the wonderful gift God has given you! Bailey is a dear, sweet girl who has been given a second chance - and she has loving caring parents who will (and have) done anything for her!

And Angie, not only have you encouraged Bailey but you have encouraged all of us. I told you that you need to publish this Blog. Your unwavering faith is certainly an inspiration to all of us. Remember when I came to visit you the last time - part of it was because I was going through a difficult time and needed to feel your faith and strength in person - I knew that if you and Bailey could get through this time in your lives, then I could deal with my problem too - I wanted your strength to rub off on me! And I'm sure your strength also has effected countless others the same way!

I know it'll be hard to leave your "second home" - but once Bailey is home and back with her family and friends, she'll jump at life and take all that it has to offer!!!!

We'll miss your Blogs, but we'll be happy you're where you belong!!!!

All my love,

10:22 PM  
Anonymous Great Aunt Robin said...

Oh my gosh - I can't believe it! Those are the words we have been waiting to hear for all these months and now that it is's almost too good to be true! I am so happy for you guys! God has certainly utilized this time to show so many people what prayer and faith can accomplish. Bailey is going to be so surprised when she sees what Tom has done for her. What a guy!!
Love you all so much.
Robin, George, Brandon, Brittany and Lindsay

11:40 PM  
Anonymous Anonymous said...

Thanks a lot made me cry. hehe.
Im just sitting here outside of your room.....still not believing that you are going home tomorrow. Im gonna have to try really hard to hold it together tomorrow morning. I have a feeling I may not do so well. :)
But how wonderful for you all!
God is amazing!

Love you! Jenny H.

1:39 AM  
Blogger Aunt Vickie said...

Wow, today's going to be a big one. I know the nurses are going to miss you. You've all become one big extended family. I'm praying for each and every one of you today. Angie, Bailey, nurses, doctors, film crew, maintenance man.....did I miss anybody?

We are so grateful for what God has given us in you, Angie and Bailey. May God's light shine bigger and brighter in each of you for the rest of your lives.

I love you and will miss these blogs like crazy!!

Aunt Vickie

7:08 AM  
Anonymous Anonymous said...

You really do need to find someone to publish this whole Blog. I think Nicholas Sparks needs to get his hands on this, I think he is the one writer that could get it done.

What a story and what a GREAT ending!

I am sitting here at work with tears rolling down my face.

God is wonderful!

I too, will miss the daily updates.

If you continue with them, can you please tell me how to get to the postings? I go through the WFMS website right now.

Thank you for sharing Bailey's life with us. When I am down and think things are so bad in my life, I just look around and life is GREAT! I have no problems!

Be safe and try to stay cool in this weather.

God Bless you and your family.

A friend
Linda Rose

7:20 AM  
Anonymous Anonymous said...

We are so happy for all of you!

Tom - why didn't you call us to help!!

The Norris Family

7:25 AM  
Blogger Mary Ann Lucas said...

Dear Angie & Bailey,

What a glorious day this is going to be for you! We know that miracles happen every day, but to witness one of such importance in your lives as well as the lives of many others is astonishing. Thank you for allowing us a view into your very personal journey.

You are loved beyond measure by so many!

Mary Ann

p.s. I can't wait to have lunch again Angie! I have missed that so much.

9:15 AM  
Anonymous Anonymous said...

Bailey and Ang-

I am so excited for you guys. I cannot believe everything great that has been happening this last month. I hope that everything works out so you guys can go home today. Take care you two...

Have a great day!!


10:04 AM  
Blogger Lara said...

I AM SO EXCITED FOR YOU! To be going home, possibly today, is the best thing for you all. I understand your apprehension, it's very reassuring to have the doctors and nurses right there, but they really aren't far away, so they'll always be there if you need them! Just think, you'll be home and you all will be able to go to the Keith Urban concert. I wish I could go with! Just to see the excitement on all of your faces (except Robin's, I guess...), well, and to see Keith, of course. I listened to him at lunch at thought of you both and how excited you must be to see the end in sight and to be planning on going home!

I'm not surprised that Tom's been re-doing Bailey's room. I bet she'll be so excited when she sees it, finished or not!

Hope this is your going-home day!

Love you lots,


2:12 PM  
Anonymous Anonymous said...

This is so wonderful! I can hardly believe it. I do hope this won't be the end of your blogs. You have a real talent with words and I know have given hope to so many of us. God can do what he wants and he may just have used Bailey to show a new course of action for some other kids. Or maybe she is the exception.

That is so neat about the new room. How could she but help but love it?

Hey if you aren't up to a book maybe the Reader's Digest? I think there are a whole lot of people who would love this story and need to hear it.

All God's best to you and Bailey.

heart hugs,
Wendy (andrewjosephspage)

3:07 PM  
Blogger Janet Shelton said...

Angie I can hear your voice as I read “it's just spiritually lifechanging.” As your friend and a mother, I understand your awe in how great God is. Thank you so much for sharing your feelings with us. How incredible that Bailey will have a new make over room. I am so excited for you both. Bailey can start school in a couple months. Love in Christ Janet

7:53 PM  
Anonymous Anonymous said...

Angie- Thank you for your efforts to document Bailey's incredible story. God has already used your lives to inspire and encourage many as the blog and comments show. Barb mentioned the blog a couple months ago, and I had to go back and read the entire thing! What a journey of faith for you all. Thanks for sharing with us, my prayers continue to be with you and your family. love-Carol Morris

2:46 PM  

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