The Night Went Well

Bailey had a great night, and doing even better today. They're slowing down a bit on their projection for going back to the Heart Center today (maybe tomorrow) - they're still working with her medication to find the right balance. She's also not been able to keep drinks down, so she's still on ice chips - which makes her very irritable, she wants a tall glass of ice water!

Today's a day when we need to focus on the overall picture and let the doctors worry about the details. We end up staring at that yellow number on the monitor (the PA pressure) like a deer caught in the headlights, and that's just crazy, because that number is bouncing all over the place right now. But the doctors are doing a great job of popping in and reassuring us how well she's doing and that she's "remarkable".

She's falling in and out of sleep quite a bit, but seems to be resting well. She likes to sleep holding her cup of ice chips. I try to pry it away and she feels it move and wakes right up. (Reminds me of when she was a baby and trying to put her in her crib at night - I would rock her and rock her and rock her before she was completely sound asleep and she would still wake right back up as soon as her little feet touched the crib mattress.)

Guess who came to visit her last night about 10:00? Jeff Gordon! He was here most of the day yesterday shooting a promotional spot for the Riley Christmas stuff, and he stopped in ICU to talk with Bailey for a minute before he left. He was so nice. Scott told him that he was sorry for the race on Sunday, and he just shrugged it off and said, "Hey, that's nothing. This right here is what it's all about." He was so happy for us that the day went so well. He signed a couple things for her and let us take his picture with her. He told Bailey, "I know you don't feel very good, but can you give me a little smile for the picture, Bailey?" And she gave him a big smile. And, the best thing is, she even remembers it today!

I'm still just speechless and stunned at this script that God has written. This is just huge for all of us and for the medical world. Dr. T said that there's nothing that a transplant would help right now since her heart is working so well. I find myself just giving thanks to God but not being able to go beyond, "Thank you, God!" Just where do we begin in thanking God for such an incredible miracle? We had no guarantees of any kind going into this "adventure", and God ends up dumping better than we could ask for right in our laps. I am just so grateful that I just fall on my knees and cry.

Thank you, God, for every single day that we get.

Love you all,
Angie