Continued Prayers

Bailey's blood pressure has been all over the place (from the low 50's to the 130's) in the last 24 hours. This morning she hit the low BP and we had doctors and nurse practitioners in here watching. Dr. T came in early this afternoon and put her on nitric. He's having a hard time understanding why yesterday morning her CVP was 10 and in about an hour's time it jumped to the 20's. His explanation is that either this is just post-pump recovery and the nitric will help settle her BP and CVP, or the anesthesia has worn off revealing where her heart really is. He said he would give her a few days on the nitric in the hopes that things will level out and her numbers will look better. One day at a time. Only God knows, and only in God's time.

She didn't sleep at all last night. And I feel completely guilty about that because I had the best sleep I've had in several days. It's a good thing Stacia (our wonderful night nurse) was here to take good care of her and keep her company. This morning she was given adavan so she could get some sleep, but Dr. T thinks that might have contributed to her low BP. So no more sleep medicine until they can figure out what the next few days are going to bring.

It's really hard to keep my eyes off the red and the turquoise numbers on the monitor. On the plus side, her heart rate has been steady at 85. I haven't heard any PVC's, and she typically had several in a minute. And she has been eating solid food today and hasn't been nauseous at all. She weighed in 4 pounds heavier this morning, but Dr. T says as long as she has elevated CVP the fluid will likely return. As I sit here, the monitor just alarmed with a low BP (low 60's). I just wish that all it took was for me to "will" the numbers to where they wanted them to be. Since that's not going to work, I just need to turn my chair around and stare at the wall instead of the monitor. I can't really watch TV because the sound only comes out of the handset attached to Bailey's bed. I could turn it up loud enough to hear it, but that would be blasting Bailey, so I watch TV with no sound. Actually, it's pretty entertaining - especially the Food Channel. Rachel Ray, being the most animated of the personalities, makes me laugh. I have no idea what she's saying and cannot even identify some of the ingredients she uses, but her facial expressions are something else.

Tom and the girls came to visit tonight, and Rissy has lost her first front tooth! And the other one is loose too and hanging crooked. She said the tooth fairy came, but she and daddy had to search for it because her pillow slid off and ended up under her bed. I'm so grateful for and proud of Tom that he can keep our household running and take such good care of Josie and Riss. It's a lot less worry for me to know that the other half of my family is safe and sound. He's taking Josie shopping for black pants and black shoes that she needs for a choir concert coming up pretty soon. He was asking what size she wore, and I said, "Josie can tell you that. Just be sure to go to the Juniors section." He seemed a little out of his element, but I'm sure he'll do fine. Josie had a volleyball game today. She said they lost, but it was a lot closer than the last time they played the red team.

Well, I'll get back to my reading. We'll see what tomorrow brings us.

Angie