Pizza Hut Talk

Bailey woke up at 10:00 this morning because she was asked to talk to a room full of Pizza Hut employees about her stay here at Riley and her brief medical history. Pizza Hut is getting ready to do a fundraiser for Riley Hospital, so they had some patients talk to them for motivation. Bailey did a GREAT job. The view of the room was blocked right up to the doorway leading in to the room, and we immediately walked in to a room full of about 40 or 50 people all staring at us. I heard Bailey actually wimper from behind her mask, and I nearly fainted because I thought I was going to have to talk to these people (I don't do well talking to more than about 3 people at a time!), but they were very nice and welcoming people and asked Bailey lots of easy questions. We were only in there about 5 minutes, but I was very proud of her. She explained everything better than anyone else would be able to (with the exception of maybe Dr. T, but he would have been too boring - haha!!). When we got back to the room, we were talking about how well she did explaining everything, and I asked her if she was going to go into the medical field when she grew up. She said yes, and then I asked whose job she would like to have out of all the people here we know and have met recently. She said she wanted to be a nurse right here on the Heart Center. I said, "Cool! You could be working with Dr. T some day." She said, "Hardly! He'd be like 80." We both laughed about that for a while. Then Dr. T came in and we had to tell him about our conversation. I said to him, "Wouldn't you like to work with Bailey?" And he rolled his eyes and mumbled something about early retirement. He would love it and he knows it! Bailey woke up with a terrible headache this morning. She somehow managed to make it through the Pizza Hut talk but when we got back up to the room, it was back for a short time again. Luckily it went away very quickly and hasn't come back since. We're thinking it was lingering effects of the IVIG she had last Friday - nausea and/or headache seem to come and go for 3 or 4 days out. In our emotional breakdown yesterday, I don't think I reported that they did an echo on Bailey yesterday. It was just to take another look to make sure nothing in her heart has changed to where they would re-think transplant. We haven't heard anything about the results, so we're fairly certainly that means no change. Got a lot of science homework done today - got some more jewelry orders in today. There was a litte girl next door (10 years old) who was discharged and sent home this afternoon, but before she left her mom came over and said her daughter would love to have a piece of jewelry from Bailey, so Bailey whipped her up a bracelet. She was so happy to get it - she just smiled and waved good-bye on the way out the door. We had an incredible lunch outside in the courtyard again today. It was sooooooo beautiful outside! The nurses are going to try and help me get Bailey to bed earlier. They're doing her dressing change at 10am and 10pm so they can be out of the way for an 11:00 bedtime. We'll see how that works tonight. She was already whining about it earlier this evening, so maybe all the whining is out of the way. (I know! I'm not holding my breath.) Thank you, guys, for all your comments out there. They are so nice to ready - like electronic greeting cards of encouragement and support. Thank you all for taking the time to lift our spirits. We look forward to reading them every evening. We love you all! Have a good night and a great day tomorrow. Love, Angie