Tuesday, May 17, 2005

Day 109

Today was an emotionally difficult day for both me and Bailey. Thank goodness for good staff. Dr. T's staff caught drift of our difficulties today and took care of us. His nurse practitioner, Beth, came by offering us moral support, and then Dr. T came up and asked if we wanted to go over to Methodist with him while he did his rounds over there. So we went for another train ride over to Methodist - Beth went with us for medical (and emotional) support. While he was rounding, he sent us to the gift shop . . . but he wouldn't give us his credit card - and I asked, too! Beth was a sweetheart - she took Marissa in the gift shop to buy her something, and Marissa picked out what Beth thought was Play Dough. She had Bailey pick something out too, and we went to the lobby area to wait for Dr. T. Marissa opened her "play dough" and it turned out to be noise putty. If you don't know what that is, it makes a terrible noise of . . . passing gas. Beth was soooooooo embarassed. She apologized to me at least 5 times on our trip back to Riley. She was so embarassed, yet she was scheming with Marissa to walk up behind Dr. T and "let it rip". There's quite a walk involved in going back to the train and then to Riley, and Marissa was hovering around Dr. T the whole time, "letting it rip" about every 10 steps or so. He was a good sport! She was so adorable - belly laughing when she'd rip a good one! Haha!! When we got off the train at Riley and walking down the long cat walk back to the hospital, Dr. T was pushing the machine and he was getting faster and faster and actually started jogging with it. Of course, Bailey is attached to it by a 6-foot cord and had no alternative but to jog right along with him. He enjoyed that! I think he just has to prove to himself on occasion that he still has power over her. (I wonder if that's a first - a patient on a Berlin Heart jogging?)

We got back to the room to find Colin and his dad waiting on us. Colin came for a follow-up appointment today - his heart is looking better and he's feeling great. It was good to see them - they really are like family now. Marissa and Josie had a good time visiting with him too. Marissa was having so much fun, she didn't even cry when she left to go home! She whispered to me before she left, "Mommy, I think Colin and I are getting to be good friends." And Josie has a crush on him. I don't know if I can handle motherhood!

We're still chopping away at homework. She's only about 1 day away from finishing up science and social studies for the year. Really the only subject she's working hard on is math, and she's got an A- in that so far. She's doing very well, and will be very excited for summer break. The teachers here at Riley take the summer off too, so that will be nice and relaxing not to have to worry about homework.

Looking forward to a good night's sleep for both me and Bailey. I'm really trying to get her to move to an earlier bedtime (like before midnight - preferably 11:00), but it's difficult. Lots of things to work in at night like dressing change, medicines, homework, etc. It just seems like it's midnight before we know it. But I'm still working on it! She was very difficult to wake up this morning at 11:00 when her teacher came, which started the whole day off on the wrong foot. Hopefully tomorrow will be better.

Wish me luck! and a prayer would be helpful too!

Love to all,

Angie

P.S. - Hey, David - Congratulations on your new job! We're all very proud of you!!


7 Comments:

Blogger Aunt Debbie A said...

Girlies,

Good morning. I'm sorry you guys had a rough day yesterday. I want to share something that picks my spirit up when I have those kind of days:

Isaiah 43
"Don't be afraid, I've redeemed you.
I've called your name. You're mine.

2When you're in over your head, I'll be there with you.

When you're in rough waters,
you will not go down.

When you're between a rock and a hard place, it won't be a dead end--

3Because I am GOD, your personal God,
The Holy of Israel, your Savior.

I paid a huge price for you:
all of Egypt, with rich Cush and Seba thrown in!

4That's how much you mean to me!
That's how much I love you!

I'd sell off the whole world to get you back, trade the creation just for you.

5"So don't be afraid: I'm with you.

God is so good...and He is right there by your side. He has a plan already in place. We are simply waiting for Him to get everything prepared. The "waiting room" is always uncomfortable. But with God, it always has purpose. He is faithful and He loves you so much. We wouldn't have the capacity to enjoy the love we share between us if it weren't for Him showing us how to love that deeply. I'm so grateful. I'm asking God to show you His love and care in an extra special and tender way today. I can't wait to see what you get!! :)

Love, Aunt Debbie xoxoxoxoxo

8:16 AM  
Blogger Jan T said...

Hi, Angie and Bailey. There are so very many people who are praying for you. I will pray specifically for you to be comforted and rebuilt. You are two incredible people and God will sustain you. He loves you and will give you peace that passes all understanding. Philippians 4:4-7.

8:58 AM  
Blogger Rev. Evans said...

Hey Bailey and Angie,
Hang in there. You are in my prayers and in the church's prayers every Sunday. Angie, I told Cindy to give you the Jamaica information.
Grace and Peace,
Rev. David

10:39 AM  
Blogger Susan said...

Hi Angie and Bailey,

You don't know me, but I was given your website address by a mutual friend, Myra Harris. We also have a special bond. My daughter, Jennifer Lewis, is a heart transplant recipient. She was transplanted with hours to live . . . on April 25, 1992! Dr. Brown performed her transplant. And, the lovable Dr. T retrieved Jen's new heart from North Carolina.

Angie, I know exactly how you felt yesterday! One thing that helped me was a little chorus we use to sing in Vacation Bible School. "This is the day that the Lord has made. I will be glad and rejoy in it." Sometimes, I had to force myself to sing it, other times it was so easy. But the music seemed to always keep running through my mind. I wonder why?!?! Hope it helps.

Please give Theresa, Debbie and Drs. Caldwell, Darraugh, Brown and Turrentine my best.

Susan Lewis Goodson

9:25 PM  
Blogger Sue Figert Meyer said...

Angie & Bailey,
Having been out of touch, I just finished reading the last 10 days of your lives, in reverse order. Liked those pictures. Hope you had a good day. Hear Vickie substitued dark chocolate M & M s for Brownies!! Well, I am back, just took the brownies out of the oven and cleaned the strawberries, but won't make it there to see you until Thursday night. It's a busy week. I've been short on sleep the last couple of nights. Hope Bailey has made a necklace for me. We pray that you may find peace while you wait. There are many things in this world we cannot control, but we can control our attitude. Sue

10:45 PM  
Blogger Sue Figert Meyer said...

Angie & Bailey,
Having been out of touch, I just finished reading the last 10 days of your lives, in reverse order. Liked those pictures. Hope you had a good day. Hear Vickie substitued dark chocolate M & M s for Brownies!! Well, I am back, just took the brownies out of the oven and cleaned the strawberries, but won't make it there to see you until Thursday night. It's a busy week. I've been short on sleep the last couple of nights. Hope Bailey has made a necklace for me. We pray that you may find peace while you wait. There are many things in this world we cannot control, but we can control our attitude. Sue

10:45 PM  
Anonymous Anonymous said...

From Riley? If so please get in touch with me!! I'd love to know how you guys are doing!!
Alliefromcali211@yahoo.com

4:04 PM  

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