Feeling Much Better

Oh, what a stressful few days. Thankfully, after checking in on Bailey yesterday, Dr. T gave the orders to wean her off the prostacyclin, the drug that was making her so sick. They couldn't just stop it, because that would have caused more problems, so they began weaning yesterday afternoon and just finished this evening at 8:00. So, she's officially off the drug. Yeah!!! That was nasty stuff. She was vomiting and had diarrhea so badly. I felt so bad for her. That's the worst I've felt emotionally in a long time. They thought they were going to have to put an NG tube in her nose to get her medication in her, but she figured out that if she took it immediately after she vomited, it would stay down. Those 2 pieces of toast I reported on Friday evening (when I was hoping she was getting used to the drug) was the only food she'd eaten in 48 hours. So far, she's only lost 2 pounds in the ordeal though. She didn't want me to leave her yesterday morning, but I had to. We didn't get much sleep at all Friday night, and I was beginning to feel the stress. I left with a headache that just kept getting worse by the minute. So I went home and took a nap. Much better now. There's still no word as to whether the medication had any effect on her lung pressures. They did an echo yesterday morning and this morning, but it was done by a technician and they, of course, can't tell the patient the results. At this point, we're just glad to be off the medication.

Did you all enjoy the race today? Danica almost did it, didn't she?! We were rooting for Jeff Bucknum, since he's the one who took Marissa's birdhouse home that she painted, but had a great time listening to the race anyway. I wanted to get to the hospital today before the race was over so I wouldn't run into any traffic, so we left the house at 2:30. We were sitting in the hospital garage listening on the radio, and only decided to make a run for it to Bailey's room when the yellow came out with about 15 or so laps to go. What an exciting race. That was fun.

Dr. T went to the race today and it must have really worn him out, because he hasn't come in to visit us today. Don't worry about us!

I'm sitting in here in the kitchen typing this update, and Bailey just sneaked up on me waving her arm in the air - the one she just got unhooked from the "sick" medicine. She's so excited! It's the first walk she's taken since Thursday when she got her second PIC line in. She's looking over my shoulder right now, and says "hi" to everyone.

Marissa and Josie are spending the night with us tonight. The girls have played hair salon, X-Box, Trouble, needlepoint, hook rug, and just about anything else you can think of. When I just left the room, they were reading and Marissa was sacked out in my bed.

Time to go. Bailey wants to use the computer to check her e-mails. Hope you all had a great weekend, and have a wonderful holiday tomorrow! I imagine you'll all be cooking out. Have fun!

Love to all,
Angie (and Bailey)